Enlightment

Hey readers,

Sometimes, I feel shocked and how instinctive I become over my children. Even though I am autistic I always thought I would never match up with other other parents. I always felt that little bit different, like something is missing but I can’t find it. But then life surprises you at times, sometimes they are the best times, the unexpected situations that really blow you away.

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I find that when I am in the mist of self-doubt and uncertainty being in a situation to defend yourself and ultimately being emerged in it, some inner strength comes along and you can do it, if exposed to that situation.

You learn more things about yourself then you would ever imagine and sometimes it is that small victories hat can make you feel so much better. Therefore enabling me to create a better and  stronger attachment between myself and my children.

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You can almost forget what you can do because the brain and the thoughts are so distorted that it alters your reality.  Sometimes us mums are so hard on ourselves that it is barbaric the mental torture we put on ourselves. The sad thing is that I am doing ok, but sometimes with all the mixed messages out and about it can cause confusion, leaving you feel a little lost.

Then small nuggets of enlightenment can help you grow in your confidence in your ability to parent.  Ideally, I have always found that stepping away and giving yourself time to be without constantly listening to the noise. This can help give me that break to think more clearly.  Even if it is to just simply breakdown and have that time to just allow all them emotions escape. Sometimes, feelings can be built up so much that they can be real burden. So, allowing them to be expressed and getting it out of your system is really beneficial instead of it building up and weighing you down.

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I have always found that in one way or another you will find way, it may take time but you will grow. Just hold on through and that moment will pass, even though it feels like hell at the time.

Cheers for reading X

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Half term tiredness

Hey readers,

Today I slept for so long, it was what I body so needed, time to rest my brain and body.  I feel like I need to have a break every now again and shut down to help me compensate for all the pain and work that I put it through.

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I think during half term school holiday I am working harder to socialise and be with others for longer periods of time. Don’t get me wrong I adore my children but being autistic it is challenging to spend so long with individuals.

I feel us autistic folk need time to hibernate and re-charge our batteries more than neurotypical people. I think one of the reasons is because I am working that harder to apply social skills that may not necessarily come naturally to me.

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Then there is the emotional side where I beat myself up over my shortfalls to ridiculous amount. One of the reasons because you can’t help but compare yourself to other random people, even though you don’t know through social media.

I always view my autism as a battle, something I have to get up and deal with every single day. On top of that I have to deal with the internal battle of low self-esteem and dealing myself as a parent.

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Most of the time I feel like I am blagging a this whole parenting thing and I put so much energy in to trying to function like everyone else  that I burn myself out, hence the breaks and shutdown.

So, that is one of the many struggles I have as an autistic parent, it is never easy but I am thankful for my blog. It is true what they say that writing things down may not cure my situation but it is a place to clear my mind of the many thoughts that are buzzing around in my head.

Cheers for reading X

Parenting is hard at times

Hey readers,

Today I just want to curl up in a ball and hide away from the world. I have had a really difficult day looking after a really energetic child. It didn’t help that when walking into town my son decided all he wanted to do was just scream most of the way and chanting that he wants daddy. It is unbelievably exhausting especially as I am so sensitive to hearing because of my autism.

Then in the afternoon I just constantly had to deal with this mental  battle in my head that if I am not entertaining my child 24/7 then somehow I am a rubbish parent. It is a constant battle that occurs in my own head and the sad thing is, is that it is all made by me. No one has told me that I am rubbish, it is just me putting so much pressure on myself, probably some guilt around being autistic and having shortfalls that other parents don’t have to deal with. However, today my anxiety is so high that I am left with a killer headache because I am so tense from my self-inflicted anxiety. I have already had a panic attack and sometimes when so bad I am fearful social services will come and take my child of me simply because I had the TV on to much or I am a bit rubbish at communicating.  It sounds silly writing this down but at the time them fears are real and frightening.

Why is it so hard to find a middle ground, I suppose this is always my problem never really reaching that right balance of moderation. I have always been extreme because that is just simply the way my brain is wired. I am all or nothing, so naturally it would seem down into my parenting. I think because a lot of things is down to not communicating and no ‘rules’ as such I find it difficulty to manage. All the things that I am good at are structure based and have a step-to-step system, it is what I excel at. I am not good at ambiguous. I never have and I don’t think I will ever have the skills no matter how many times I try. SO, basically I need to accept me for who  I am and instead of putting me down, embrace them skills and use them to my advantage,. I think this is one of the biggest learning curves for me as an autistic parent to master.

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But I will say truefully with having such energetic child who will not sit still or does not want to engage in anything longer then five minutes is tough. Especially, when at times where I am by myself and feel like constantly breaking down with fear of how am I going to get past the next three hours?
I hope this stage gets easier and that I can relax and enjoy parenting a bit more and less of a pain in the arse chore that I have to get through.

I feel awful for writing this but this is the truth, this is how I feel at times. Don’t get me wrong other times parenting feels like a breeze especially when there is another parent to help out. But currently with my 3 years old child you it is solid work and really has an ability to have a knack at pushing my buttons.

Cheers for reading X

Secondary Primary Caregiver

Hey readers,

This week has been somewhat challenging. My son has been sick and my routine has been changed. I am autistic therefore find change difficult, not to mention long periods of time with my children is hard and mentally draining for me.

Now I do have my husband as my carer due to my disability. As we are both are at home we can split the care if we wish. It allows me to have a break. However,  when I do I feel a break I am left feeling dreadful and guilty.

Why do I feel like this? well, because I feel I am not competent in being an adequate mother. I feel like a failure, maybe it is because I feel like I have been conditioned to feel like this.

I know there was an interesting drama on the telly some time ago, reflecting on real-life situations of parents who are disabled and the fear of social services taking their children away.

I worry about what happens when my husband, God forbid dies in an accident, would social services take my children away? In one sense I would be doing more jobs like cooking etc. So, maybe I may just deal with it and I wouldn’t have as much time to think and reflect, therefore not feeling as bad.

One professional who I discussed my fears with regarding the situation about if hubby dies. She was very comforting with her words, saying that I would just deal with the situation and readjust to a new routine. I probably get some additional help. She works closely with social services and worked with other individuals with additional needs. She did say I had to be really bad to get my children taken off me. She knew that I worked really hard, open to professionals and I wasn’t as bad as I feel inside my own head.

Why do I feel scared then? I feel that I am autistic and Like I would be judged for my downfalls, even though sometimes my autism can enhance my parenting!

The guilt eats away at me, I feel I should be working that bit harder as an autistic parent to make up for my incompetence. I feel I should focus more on my child. Of course, there are times when my husband is not around and I look after both children and funnily enough there is nothing bad that happened.

It is the battle I feel that I have to fight every single day. I dread some days because it is only me who is beating myself mentally for not being good enough parent. I feel as I am the secondary caregiver and that my role is not good enough. Even though I work my ass off and having to do more things consciously that others would take it like the water of a duck’s back. I blame myself for having to have breaks and not for feeling better after. The guilt that I should be enjoying being with my child and not want to escape. But at times that is just what I want to do. Escape from the noise and having to focus all my attention on the child. Having to work overtime to plan and to perform in the correct manner. It is so exhausting and sometimes I just want to stop thinking.

Sometimes I feel that I am not worthy of being a parent because of my autism. I will influence their development and if anything goes wrong then I blame myself for not being good enough.  It is easy to get in this cycle especially if you have low self-worth. You feel isolated as there is not enough support for autistic parenting. We don’t fall under the mental health or learning disabilities section, meaning that we are stranded, stuck and confused. That is how I feel. Being in a neurotypical world I am constantly battling and sometimes it is just my thoughts, other times I feel there are real barriers that hinder my performance.

I have recently thought that couple therapy may help me as a medium to express my feelings of not being as good as the other parent and all them insecurities attached. If you are interested in the benefits of couples counselling here is an article discussing weather couple therapy is worth it – Regain.us.

Cheers for reading X