On the side line 

Hey readers,

When I was a child I did this thing called masking, aka faking it and what this means is that I learnt the behaviour of others. The problem being is that if something changes that I can mess up badly because I can’t be flexible with my thinking. That is the one of the characteristics of autism is we manage change and see things  black or white especially when it comes to learn.

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I think it’s really hard being an autistic girl growing up because there is so much more pressure to be sociable then a boy. That all the boys got away with not getting noticed there for less social pressure. I used to absolutely hate being a girl because of this reason and I thought boys had it a lot easier or more relaxed attitude with regards to social and communication which suited me perfectly.

Now that I’m an adult I find it a bit more easier because I have more experience and knowledge but I still frequently mess up. If I am feeling anxious or if there is too much going on in my head can’t seem to focus on the rules. There are times when stressful factors cause me more brain power than normal and it is like I regress in my behaviour. That is why it’s so hard to measure autism, as it is not something that you can say x y and z it’s constantly shifting depending on the environment and mindset of that individual.

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Since being a parent I have learnt that there are so many other social rules involved when bringing up a child.

I first it’s lovely when my children where new born as there is less pressure on me to be sociable but since my child has started school last year I noticed that there’s a hell of a lot more interaction going on.

Me being an autistic parent does affects my self esteem. A lot of the time I feel inadequate,  especially as my husband is very good at communicating and engaging with others. It leaves me feeling really angry and frustrated. I know comparing is the worst thing to do but it coincides with me learning of other people.

I think  one of the hardest and upsetting things is when  people don’t see you as an individual but some sort of invalid because you’re autistic. They don’t look past the label or they do but then they just talk down to you in a condescending way. The thing is I am aware exactly what is happening, I just I don’t have the skills to communicate and express myself as clearly as other people do.

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It has really made me feel quite low at times because I feel like I can’t give my child everything that a typical parent has to offer. I suppose that is why I enjoy the school holidays more because I don’t have to worry about the social things. The only downside is that when I return I have to deal with the social side of education and what not.I feel rubbish and I have felt very very low causing me to struggle to get up in the mornings. I have also learnt to avoid situations and tend to get my husband to do them tasks because it’s too upsetting at times to have to face the discrimination against me. I think that’s one of the saddest things about being an autistic parent is the fact that you deal with a lot of rejection or misunderstanding. I like my voice isn’t heard and again that familiar Outcast feeling appears.

Cheers for reading X

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Autistic Feet

Hey readers,

My feet hurt today as a result of over using them yesterday. I know so what?! Here is the think why I am talking about my feet is the fact I am autistic you see and my feet posture is not very good. I have always had problems with standing and the way I coordinate my feet.

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I am so clumsy as well when I walk, I am guaranteed to trip up even if there is nothing there. The amount of bashing my toes into stuff and cursing under my breathe is unreal. My husband affectionately finds it funny.

I also shuffle my feet, especially when I am stressed. I am constantly getting told stop shuffling your feet like I am some kind of child.

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You don’t realise how hard it is to put one foot in front of the other. It can be really challenging. I never really thought about my physical problems when I was younger and now as an autistic adult I am still learning.

It is my arms I struggle with – not really knowing what to do with them when I walk, I find them painful and just frustrating. It is like I have to train my mind to swing my arms when I walk. It is so difficult as I am rubbish at doing two tasks at the same time.

One of the major problems that I struggle with as an autistic person is using my spacial awareness skills and navigating around objects and people. I am not good at forward planning especially in a busy place where I am over stimulated with the sensory information. Sometimes, I get so overwhelmed that I need to sit down and take a moment to take a break because of how mentally exhausting it is.

If I don’t think about my walking and focus on it, I really struggle with bumping into things or trip up.

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We as a human are meant to learn this skill at an early age and it to be developed. Therefore not having to think about it as it is a long term in implicit memory. It is wired in the brain so you don’t have to think about it, it is second nature.  Being an autistic person we miss out on this opportunity and I do wonder before language evolved how many humans died due to lack of ‘natural’ skills due to having a different way of thinking.

So, therefore if you do wonder why do us autistic people get SO tired this is a little insight, because we have to constantly work our asses of and remembering all these ‘natural’ rules that people take for granted.

Cheers for reading X

Best of Worst
Cuddle Fairy
Bringing up Georgia

Social anxiety kicks in!

Hey readers,

Today I attempted to a volunteer place but totally failed at it and now I feel a fool. 

It was an admin role but it was in an open arena with different people at different desks etc. and I just felt overwhelmed, uncomfortable paranoia and anxious. 

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I was so anxious that I had a panic attack. I felt so claustrophobic in that room. Like a fish in a glass bowl and everyone was staring at me. It is the most horrendous and intense feeling ever. 

I just could not handle it mentally. I don’t do small talk and the things I think about to talk about are not appropriate. I think it is anxiety that does that. 

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I just could not handle it and just went into flight or fight response. I forgot how bad my social anxiety can be, I have not been in this type of social situation for a long time.

I hate myself and now I am beating myself up about it. I know when I have cooled down and talked sense to myself I will see it from a different perspective but right now, in this moment, I am really down and emotional.

I feel that my response and lack of ability makes me a bad person, incapable and a failure. For a brief second I was tempted to jump in front of a train. Don’t worry I won’t but I want to be frank and real. This is real life going through the motions. You have a warped view of yourself and what you ‘ believe’ others think. 

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I feel I am less of a person because I can’t do this role, because I view success on where I have a job or not and feel that what society views as a good person or parent. This message feels even more present currently through the media when we are heading towards the general elections. 

I feel I have let myself down and my children. Why can’t I accept that I am autistic and some things are hard? I would never, ever expect a person who is confided in a wheel chair to just get up and walk.  That does not stop me being so hard on myself because the stigma is still prevalent and I don’t in normal life discuss really autism because to be perfectly honest I am embarrassed and ashamed. I feel guilty and let down. I know you’re going to say I shouldn’t feel like this but I do and I have experienced people judge me so it is hard to change. Though on a positive note it is something I am working on, but it takes time especially when it damages you so emotionally. The treatment is still discriminator out there, people see mental illness or invisibility as a negative and something that makes you less of a person.

I think I am also scared with regards to autism as it was reported in the news that NHS are diagnosis less children with less severe autism. What next I feel like autism is misunderstood and I am scared for myself and others what the fortune holds. 

Cheers for reading X

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Autistic adulting sucks!

Hey readers,

I hate people, seriously all they ever seems to do is be fake it. Why can’t people be honest and just tell the truth because you think it hurts peoples feelings. But here is the thing I already know so don’t pussy around the subject.

It sucks being autistic, the constant rejection of people, pretending to be nice when really they don’t give two monkeys.

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I am sick of it and sick of this world that I live in. It doesn’t help I am stuck in places where people don’t really know where to put me. Let’s face facts first impressions count and no one likes the awkwardness of the autistic people, it is much easier to just deny us the opportunity. Even though us autistic people would so bloody hard, more so then the average person because we have to,i t’s a fight to fit in when your just totally failing on the outside. I feel lost and I don’t belong, this place feels lonely. Sometimes, I just can’t face it anymore but once again you have to find the strength to get back up again even though you are plummeting into a dark, dark place.

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It sucks to have to undergo interviews when clearly they are not autistic friendly and again I feel like my needs are met.  Don’t you understand us autistic people can’t cope with question after question without getting burnt out, not to mention the social interaction, it takes all our resources to get through it to then be told that actually we are not looking for people at the moment. But why put me through this hell, what you really mean is your not a suitable candidate, just be honest, at least I know where I stand. Right now I feel insulted and taken for a full. It took all my energy to get out my comfort zone and I am devastated. It really does suck because of the effort I but into these things but never get the opportunities, I don’t know why I bother.

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Even as an adult I am always dealt with the hand of rejection and you know what people it sucks, big time for us autistic people to be treated like this. I am just thankful for my blog as it is an outlet when other times I can not muster the words to anyone the pain I am battling everyday. Rant over!

Cheers for reading

d

ethannevelyn.com
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