Autistic Feet

Hey readers,

My feet hurt today as a result of over using them yesterday. I know so what?! Here is the think why I am talking about my feet is the fact I am autistic you see and my feet posture is not very good. I have always had problems with standing and the way I coordinate my feet.

walking

I am so clumsy as well when I walk, I am guaranteed to trip up even if there is nothing there. The amount of bashing my toes into stuff and cursing under my breathe is unreal. My husband affectionately finds it funny.

I also shuffle my feet, especially when I am stressed. I am constantly getting told stop shuffling your feet like I am some kind of child.

walking 2

You don’t realise how hard it is to put one foot in front of the other. It can be really challenging. I never really thought about my physical problems when I was younger and now as an autistic adult I am still learning.

It is my arms I struggle with – not really knowing what to do with them when I walk, I find them painful and just frustrating. It is like I have to train my mind to swing my arms when I walk. It is so difficult as I am rubbish at doing two tasks at the same time.

One of the major problems that I struggle with as an autistic person is using my spacial awareness skills and navigating around objects and people. I am not good at forward planning especially in a busy place where I am over stimulated with the sensory information. Sometimes, I get so overwhelmed that I need to sit down and take a moment to take a break because of how mentally exhausting it is.

If I don’t think about my walking and focus on it, I really struggle with bumping into things or trip up.

walking 3

We as a human are meant to learn this skill at an early age and it to be developed. Therefore not having to think about it as it is a long term in implicit memory. It is wired in the brain so you don’t have to think about it, it is second nature.  Being an autistic person we miss out on this opportunity and I do wonder before language evolved how many humans died due to lack of ‘natural’ skills due to having a different way of thinking.

So, therefore if you do wonder why do us autistic people get SO tired this is a little insight, because we have to constantly work our asses of and remembering all these ‘natural’ rules that people take for granted.

Cheers for reading X

Best of Worst
Cuddle Fairy
Bringing up Georgia

Please what

Please don’t mess with my brain,

It hurts and is nontraditional,

it works the way it is designed,

in non neurotypical manner,

I don’t understand the expectations,

so please be kind before assuming,

I am not rude,

I am just confused.

The day in the life of a depressive

Hey readers,

Today I woke up elevated with thoughts of all sorts of possibilities and within ten minutes everything got shot down again. You see depression for me anyway is not where you sit in corner and cry 24/7 – though there have been times when I have done that. But I feel depression is not simply the black cloud that hangs above but it is all sorts of emotions that I experience during the day.

abstract 1

This may seem an odd thing to say but there are glimpses of happiness that can last 30 seconds to five minutes and I have even been know to laugh. You would think nothing was wrong with me, but you will be fooled.

Then my brain reminds  me of how shit my life is and how I mess up everything, and majority of the time it can be rooted to my autism. I don’t care what people’s views are living with autism is no walk in the park and it is hard to deal with. Sometimes, I just want to have a break from myself and then just stop the work. It is exhausting and emotionally draining, which affects my mood deeply.

abstract 2

The next feeling could be agitation and just general hopelessness of being  stuck  in a situation that I have no  control over.

Anger comes along when I have to listen to the next person who tells me that it is mind over matter and that I can achieve anything if I put my mind to it. Don’t let the autism get the way they chant, but basically everyone can fuck I want to  be dead. For that one second sometimes you think the world would be better if I simply didn’t exist then having to deal with the nonsense circulates around my head.

abstract 3

But then there are moments that are beautiful that are full of wonder and amazement that I can almost think I have achieved something good that day.

Until you start crying randomly at some music that brings it all back and all the negativity is refaced.

You see depression isn’t just one set of emotion, I have only named a few in this post but I want people to be aware that this mental illness is not just dichotomy and that it is much more complicated then what the media portray.

Cheers for reading X

Autistic Blogger!

Hey readers,

I hear this term branded around a lot through the bloggershere called ‘tribe’, to me it feels like we are back in the playground. Maybe because I don’t really connect to people the same way others do because of my autism. It makes me feel maybe a bit isolated or that I am missing out on a better support network.
The big question is, do you need a tribe of people to connect with to empower and motivate you? does it make you more successful? these are the kind of questions I think about. I suppose it depends on what you really want and need from people, I guess. For me the whole tribe business makes me feel like a failure yet again at life, it is another point score if you are in with the right crowd and for me being autistic that will never be. Yes OK if your autistic should you be worried about having such feelings of loss and for me yes it does get to me at times. It would be nice to bounce ideas off with others but the fear of rejection is much stronger. I don’t really have an answer. I think it is really down to my state of mind having an influence when I am engaging in the social media platforms.

Sometimes you get a feeling to be a successful blogger you have to be in some kind of tribe with others. It is a real shame I feel as you not always getting merit for your work but in who you know instead. Fairplay to people that do, because it takes a lot of additional work other then just writing content to making a blog successful. A major factor is engaging in social media as a form of communicating with the audience or attending events that help achieve recognition and achievement statues. Sadly, I don’t feel I will ever truly get to grips connecting on such a level, but that is ok because I do have a disability that limits me. Whether I like it or not, somethings I can improve, somethings I can’t but having the knowledge to accept that is a milestone for me personally.

Sometimes, you get what you put in and for me I can only do so much before I have pushed past my threshold and want to collapse with mental exhaustion.

Until you start a blog and work on social media, you really don’t realise what hard work it is with keep plugging away and reaching out. As they say nothing comes for free.

One major attribute that influences my performance or connecting to people is communication. It is like the backbone of autism. It plays such a huge role on and off line. My brain is overloaded as it is with all the rules I need to remember. I stick to the rules that I can follow and it is not the ‘norm’, it’s controlled and I don’t feel I am being rude but maybe I am being very rigid and not flexible with my thinking but then again that is an effect of my autism interfering it’s ugly head.

It would be wonderful to have someone to connect with but I don’t feel it is important right now but maybe next week I may different about the whole thing. But sadly autism is selfish and it hinders you. It never leaves you or lets you forget that there is a big influence there right in your brain controlling your interpretations on everything that you are exposed to. It really sucks at times but other times it is the fuel that keeps my fire burning inside of me.

OK, I have bitched and have been a moany cow so I am going to focus on a positive here. People aren’t aware of how much I have come along in my improvements in myself. Blogging has given me a voice to express whatever I feel I want to share. When I am having a meltdown it has been a tool to distract me from all the things going one and stops me getting overloaded when I can simply focus on just writing. It has calmed me when I have been so angry I have wanted to explode. It has helped me to understand myself who I am and try to take on board other people’s perspective (which is a real struggle at the best of times). It has taught me on a basic level how to have simple conversations and it further help me develop as a person with autism.
So, what is the point of this ramble, well I am just trying to find away to accept me with my disability. I want others to understand particularly what it is like for female adults with autism.
Who knew blogging would be such a learning journey to think about yourself and where you are in the pecking order even though I don’t really know what I want. I think if I look internally I want to feel accepted from others, though I don’t know whether that will ever happen. Maybe I just feel really lonely and a bit sad today when I see others in the world can just make friends and excel verbally. I seem to fall over at the first hurdle. It is hard as blogging is so social and if you want to grow networking is crucial I feel.

For me personally most of the time I go about my days winging it and trying to keep my head above water whilst others speed pass by me.
That my readers is what my personal take is of an autistic blogger in a social climate in the blog world.

Cheers for reading X

Spectrum Sunday
Run Jump Scrap!

Autisitic Parenting

Hey readers,

Well my son has started school and one of the problems I struggle with being as an autistic mum is socialising with other parents.

The dreaded waiting at the school gates with the deathing noise makes my head spin. I physically shake and want to stim so badly that I need to control myself in order to mask these problems I deal with.

I know you ask why, why don’t I just be me. But it is not just me, it is my son as well. I am part of him and what I do influences him. Maybe not obviously but in the subtle ways with speaking to parents and getting that invite to a friend’s birthday. People judge sadly and what I do can include or isolate him, as sad as society is.

The hard thing for me as a parent is to appear shy/enigma in order to not let people see the real me as I am hyperactive/spontaneous, might not say the right thing. Laugh and be childish and not click with others.

No one ever prepares you for this and how it will influence your son’s confidence. Will I further fuck him up if I be me, should I hide away in order to make my son blend in better. Or should I be authentic as it provides my son of understanding disability and difference making him more acceptable of others that are different (not necessarily autistic). Just one mould fit it appears in this modern culture I feel and that all problems should  hide away as it still a taboo to be honest with children without some professional having a fit and pretending that everything is fluffy and cosy in life.

These are the kind of decision I have to make. I am currently taking a step back from school duties as the anxiety is so high and pariona is kicking in.

They say life is too short and you should just do what the fear wants you not to do. But to what extend is this not a good idea anymore.

Baby steps are hard for me as it is grey, I am all or nothing and I find it hard once I have an idea in my head to stop myself in committing to it fully. Alternatively I just shut down and have no interest in participating in the demotivated situation I have to face.All I want to close off, cry my eyes out, feel what is the point in doing it all. Should I have been a parent? do I have that right? and similar thoughts take over my thinking.

Nothing is ever clear, no right or wrong answers which for my autistic brain feels overwhelmed and can trigger a meltdown in order to try and regulate how I feel.

Autism is selfish or is it people don’t see I am trying to work my ass off that little bit more as every day is struggle and I have to make decisions fast.

it is frustrating when people think oh she doesn’t look autistic or she can walk down the road or she can communicate. When really most of it is planned, scheduled and played out like a script. Most of the time I am blagging it with the information I hold from past experiences/observing or reading how others deal with this as a parent.

Don’t judge me when you see me, I am scared because I don’t know what I am doing.

I am not good with emotions, they are messy and I don’t do messy.

I like order and structure, I like steps that have a sequence. When it is spontaneous and no order I am scared and my anxiety reaches new heights.

SO this is what I am currently trying to work my way through and yeah I can do a course and have some rules. But then things change, situation/environmental/age etc influence the shit I have to deal with. As we all know change is the enemy of an autistic person.

It is all very well having short stints of parenting courses to guild you but for an autistic person we need continuous support and sadly it is always because of the funds and people like to group everything in one category.

I always find it ironic that autistic people like logical order but that disability is so grey and complex it is unreal.

That is it that is one the many battles I undergo as an autistic parent and we haven’t even reached pubescent years…..oh what joy!

 

Cheers for reading X

 

Spectrum Sunday