Lost

Hey readers,

Today I feel a bit lonely, though not in the sense where I want to mingle with people. More isolating, knowing that I am different and that sense of not being ‘good enough’. Often I can ignore or distract myself from focusing on negativity. But today is a struggle. I just feel like I can not function like the rest of society. I feel my inadequacies…. they feel so loud in my head, they might not be real but they feel real to me and today it hurts.

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I have always battled with being autisitic…it is tough going, after a tough long week of challenges with a little fight left it can defeat you. I think one of my problems so I am not often relaxed in situations such as having to go to the school assembly, this is where I feel most insecure. I don’t feel right and I feel like everyone is watching me. I know I  am probably being narcissistic and changes are no one is, no one cares, hey even some may feel similar.

Concrete pillars

At the time it feels scary, and because my anxiety is on that super alert it is hard to come down without the good old meltdown. Yes to that question I did have an epic meltdown, it is all I could do. Then I took my laptop and wrote my thoughts. No real answers, it is merely a record of how I am feeling.

I feel not amazing but cathartic, now I am going off for a tea, cause let’s face it, tea doesn’t cure feeling crap but sure makes the painless hard to bear.

Cheers for reading X

The struggle is within

Hey readers,

I don’t often discuss my parenting issues in relation to my autism, mainly because I am embarrassed and quite frankly ashamed.

I am going to be straight up and honest and say that I struggle with this parenting thing. Let’s be more specific as I am aware that actually, I am good at some bits. Depression would argue but that it is the truth. However, the one area I do struggle with is mainly with my 4 years old and trying to entertain him for long periods. I feel guilty if I can’t entertain him but stuck in a dilemma where I can’t concentrate on people for long periods of time, it totally exhausted me. I am also an introvert so therefore need time alone to energise me, I find interacting exhausting as a lot of the time I am thinking beforehand about how to communicate. The times when I am not thinking are when I am being impulsive due to anxiety therefore not censoring and not always saying the right. Not really rude, just random and repetitive. Kinda overlaps with ADHD/OCD traits I have learnt. I don’t have ADHD but with Aspergers there many overlapping traits from other conditions that are apparent. I digress (a major trait of mine right there).

I find it hard to entertain as there are many thought processes that occur and that is tiring. 9 times out of 10 after ten minutes of play I am exhausted mentally. I need to do nothing and shut down as I have used all my energy up focusing on that one action that takes many different social rules.

Little Girl, Child, Girl Child, Person

I think one area that is really tough for like me as an autistic living in a technological world (though most of the time it is the dream) I do get sucked into the whole idea of perfect parenting with this idea that you have to entertain your children all the time.

I am one of the few or many not many other autistic people have spoken out in actually I do care what people think and I am very aware of me. I am not dissing autistic people that don’t give a dame, in actual fact, I admire you and wish I was bloody like that, hell it would so liberating. But I have not reached that acceptance of me.

I wish I could just be laid back, but it seems I am a worrier and feel that because I am an autistic parent I need to make up for my inadequacies.

Cheers for reading X

 

Maybe

Hey readers,

I have Asperger’s Syndrome, a mild form of autism (though to me it is not mild and it is present every day in my life).

Though there are so many areas to discuss autism today I am going focus on one thing that affects me and causes great distress at the moment. That is the word ‘maybe’, which by the way I hate it and I hate it in relation to a response to a question. It is covered in grey and makes me stressed, especially when it is a response to a question which I want a definite answer (which 90% of the time).

Birds II

You see as an autistic person I like control, I like to know what is happening. I love routine it comforts me. Sometimes I admit I get too rigid that I get struck and obsessive making my health deteriorate. One of the reasons is because I like black and white, I don’t like the murky waters of the unknown. I never have, I feel it is innate and my body responds instantly. I can remember as a young child-hating change and uncertainty. I had carers who seemed unpredictable which is not great if you have an autistic mind like myself you get very confused as to what is happening.  I was on edge not knowing how someone would respond. I had night terrors because of the fear. That is just one example.

chicago night traffic

Maybe I will, maybe I won’t? but why can’t I have a yes or a no? Often, I didn’t care either way, I was more focused on the answer to be certain. I don’t like guessing games, I like certainty.

The blue window 02

I don’t know really what is the point to the point of this post, I just wanted to get it off my chest because right now I am dealing with maybe which quite frankly is most infuriating.

cheers for reading X

Hair pulling and autism

Hey readers,

One of my problems due to my depression and autism is that I can pull my hair out. I link it to sensory purposes as sometimes I am so numb that I want to feel something or hurt myself. I have been knowing to pull and yank my hair when I am very distressed. I have ripped out clumps of hair when I am going through a meltdown or when I am really angry because I don’t always have the communication skills to express myself. Sometimes, I feel that I need to punish myself because I am not a good parent. I hate myself and worry that I am royally screwing up my children because I have a disability and can not always give the opportunities that other parents can give to their children.

I know it is not the ‘normal’ way to self-harm that has been popularised over the years. I get so frustrated and hurt myself due to low self-esteem and feelings of inadequacy due to my autism.  I know this is a sad state of affairs but it is true.

I have always struggled with my autism probably because of past responses of parent/carer when I was younger of not being good enough or the adult of my care being in denial and rejecting my diagnosis. Even to this day I still battle with the thoughts frequently.

I have discussed in a vlog before about skin picking but I haven’t mentioned hair pulling because I was in a bit of denial. I feel through the autism community is good online in accepting and promoting praise for the disability. I feel that if you were to pipe up and say actually sometimes I don’t like being autistic, that you might get abuse and people won’t like you. I guess I am not yet that strong to always speak out and be honest about how I am feeling. I think it is something with time and with my confidence in blogging writing it will come out.

Maybe one day I may get so bad that I need to look at treatment to sort out my hair. One way could be a hair transplant. look into hair transplant cost

Cheers for reading X

I wish….

Hey readers,

Do you wake up and feel the dread in the pit of your stomach. You wonder how the heck you are going to get through the day, the hours feel long and you feel like you are battling through. Everywhere you look people look like they have their sh*t together and you are in this dark place. You want to hide and run away but there is this dark cloud that follows you everywhere you go.

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There are times when I question everything and consider would it be better I wasn’t here. If I died would my boys have a better life? I wouldn’t but sometimes these thoughts pop up when I doubt myself, everything goes wrong and I am just tired of fighting. I just want to hide for a bit. I wish I could run away from myself but no I am stuck with this bag of rubbish.

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I lie in bed and go over everything. I beat myself up with doubt and knock myself down with criticism. I am angry and hate my autism. It makes everything crap or hard work. I don’t feel a natural mother and sometimes truth be told I get angry at my husband for allowing me to have children. Having depression as a parent is tough, I wish I could switch it off. Sometimes the depression lies to me, or my judgments are all wrong. I doubt everything. it is a battle and I wish I could just go out for a walk and it is gone, but mental health is not like that.

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Sometimes I am OK and other days I can barely get out of bed. Then if that weren’t bad enough there is another battle with all the dark thoughts of guilt I have and quite frankly it is exhausting. I wish I could switch it all off, my thoughts and feelings and just be free like a bird.

My husband struggles to understand at times how I feel, probably because we don’t always have time to talk. That is why in the past I have found it beneficial to seek counselling and something that may be helpful for both myself and husband understand each other better. Do check this article that explains all about marriage counselling, Regain.us.

Cheers for reading X

Blog Therapy 

Hey readers,

Some days are really crap, you wonder how you are going to get through them especially when it is only 9:30 on the morning.

I am so tearful because I have reduced one set of medication. I know it is only a side effect and will be worth the pain in the long run. But right now it is a struggle especially when I am so needed during the summer holiday.

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I am not very good when people demand me for long periods of time.  For me being autistic it is mentally draining and a real battle. I need to switch off and sometimes I just need escape to my bedroom for some peace for five.

I feel a bit suffocated as well being in a flat and the weather being rubbish. I just haven’t got the motivation to anything when I am so tired.

suffocated

I feel so guilty for feeling tired when I should be on the ball but sometimes I question My ability to parent such as today. I know this is just short lived and because I am frustrated, that being said I have to battle with this thoughts.

I feel pulled into two ways to right my personal feelings as one side of me thinks I am being silly. The other side feels it is cathartic and may help someone.

recovery

It is amazing how powerful words on and just writing down your thoughts can really help even if there is no solution. It is a bit like therapy and that is one of the reasons why I love to blog. As in real life I am rubbish at expressing myself to others. Words seem to get mangled up and I stutter and shut down. Again this is influenced by my autism.

So, that is why I turn to my blog as a place of comfort and release of emotions. I don’t feel judged and it is a place where I can freely right without having to worry about all the other social aspects involved when speaking verbally.

Cheers for reading X

Autistic Feet

Hey readers,

My feet hurt today as a result of over using them yesterday. I know so what?! Here is the think why I am talking about my feet is the fact I am autistic you see and my feet posture is not very good. I have always had problems with standing and the way I coordinate my feet.

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I am so clumsy as well when I walk, I am guaranteed to trip up even if there is nothing there. The amount of bashing my toes into stuff and cursing under my breathe is unreal. My husband affectionately finds it funny.

I also shuffle my feet, especially when I am stressed. I am constantly getting told stop shuffling your feet like I am some kind of child.

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You don’t realise how hard it is to put one foot in front of the other. It can be really challenging. I never really thought about my physical problems when I was younger and now as an autistic adult I am still learning.

It is my arms I struggle with – not really knowing what to do with them when I walk, I find them painful and just frustrating. It is like I have to train my mind to swing my arms when I walk. It is so difficult as I am rubbish at doing two tasks at the same time.

One of the major problems that I struggle with as an autistic person is using my spacial awareness skills and navigating around objects and people. I am not good at forward planning especially in a busy place where I am over stimulated with the sensory information. Sometimes, I get so overwhelmed that I need to sit down and take a moment to take a break because of how mentally exhausting it is.

If I don’t think about my walking and focus on it, I really struggle with bumping into things or trip up.

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We as a human are meant to learn this skill at an early age and it to be developed. Therefore not having to think about it as it is a long term in implicit memory. It is wired in the brain so you don’t have to think about it, it is second nature.  Being an autistic person we miss out on this opportunity and I do wonder before language evolved how many humans died due to lack of ‘natural’ skills due to having a different way of thinking.

So, therefore if you do wonder why do us autistic people get SO tired this is a little insight, because we have to constantly work our asses of and remembering all these ‘natural’ rules that people take for granted.

Cheers for reading X

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