Autistic adulting sucks!

Hey readers,

I hate people, seriously all they ever seems to do is be fake it. Why can’t people be honest and just tell the truth because you think it hurts peoples feelings. But here is the thing I already know so don’t pussy around the subject.

It sucks being autistic, the constant rejection of people, pretending to be nice when really they don’t give two monkeys.

stranded

I am sick of it and sick of this world that I live in. It doesn’t help I am stuck in places where people don’t really know where to put me. Let’s face facts first impressions count and no one likes the awkwardness of the autistic people, it is much easier to just deny us the opportunity. Even though us autistic people would so bloody hard, more so then the average person because we have to,i t’s a fight to fit in when your just totally failing on the outside. I feel lost and I don’t belong, this place feels lonely. Sometimes, I just can’t face it anymore but once again you have to find the strength to get back up again even though you are plummeting into a dark, dark place.

lost

It sucks to have to undergo interviews when clearly they are not autistic friendly and again I feel like my needs are met.  Don’t you understand us autistic people can’t cope with question after question without getting burnt out, not to mention the social interaction, it takes all our resources to get through it to then be told that actually we are not looking for people at the moment. But why put me through this hell, what you really mean is your not a suitable candidate, just be honest, at least I know where I stand. Right now I feel insulted and taken for a full. It took all my energy to get out my comfort zone and I am devastated. It really does suck because of the effort I but into these things but never get the opportunities, I don’t know why I bother.

darkness

Even as an adult I am always dealt with the hand of rejection and you know what people it sucks, big time for us autistic people to be treated like this. I am just thankful for my blog as it is an outlet when other times I can not muster the words to anyone the pain I am battling everyday. Rant over!

Cheers for reading

d

ethannevelyn.com
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Twin Mummy and Daddy

My boy of late…

Hey readers,

I have a confession to make, today was hard day for me mentally, not only am I dealing with my  own issues but also them of  my son’s. Today he had a major meltdown which left us at breaking point. Not just for me I think, but actually for my husband as well. My husband is normally chilled out and causal about stuff so, it must be pretty bad when he is worried about how he will not only mange  with his wife’s autism (he is my carer as well) but potentially his son’s.

back

I am currently sat in the other room because I really can’t cope at this point with my son’s screaming for over an hour.

We went to visit a butterfly farm locally to us, today, the butterflies are in a massive green house room and can freely flutter by. Here is where the problem lies, my son had a meltdown at this place because he could not cope with the butterflies random movement (which  I struggle also struggle with) but had taken medication to physical effects of anxiety).  He is 5 years old and is an independent walker however, my husband had to carry him around as the only place where he was calm after the heightened anxiety was where the butterflies were not in one of the other areas. The moment he stepped back into the arena where all the butterflies were that was it again, he just could not cope with it and was panic attack.

All afternoon he has been on a roller-coaster of emotions. But finally he has settled to just streaming and I mean screaming. He literally has to be restraint because of how violent his behaviour has become. He is biting, scratching, hitting, and lashing out and potentially harming our youngest.

Now,  I have been on a parenting course where it is frowned upon restraining children. I am very conscious of this. I do not do it under any circumstances but when it is a situation where risk involved and the child is hurting themselves and no other way can help that child stay calm then is not much left we could of done.

tea

Now you are wondering have we been to the professionals to discuss our concerns and the answer is yes, several times. Let me tell you the background, firstly he started school this September so we approached the school to see what his behaviour was like and to ask for guidance. They did observe but didn’t feel any worries. So, we went to our GP, he said to speak to the specialist person. SO we did and filled out our worries on paper, then they would investigate. That was fine, they came back to us I think within the month saying that they have taken on board our concerns but because his behaviour is not affecting him at school that they can not really do anything. However, they did say that come back in a year and see what is behaviour is like and see if any behaviour changes have occurred.

Well that is great help because as most of us know generally children are totally different when they are school, it is a different environment etc. I asked my cpn (community psychiatric nurse) who see’s me for my mental health what his advice is because he may have had experience and what he thinks we should do.

He said that the only path at the moment is through the school or GP. So because my son’s behaviour is masked (because I know for one he copies a lot of behaviour, he is very similar to me. I kid you not my husband always says that talking to him is like talking to me).

cold

So, basically there is no other avenue, because apparently if the child is perfectly well behaved then the child will go through the net but if the child is extreme then they will get the help they deserve. Bearing in mind that these teachers are looking after 30 odd children so they can’t spend long periods of time with them individually. It is just so frustrating right now because we just don’t know what to do but one thing is for sure no seems to care if your not extreme. They see the whole picture and that is what really sucks.

I am writing this so that I can document my journey with my eldest, who knows where we will end up but his behaviour is erratic and there is genuine concern there.

Cheers for reading X

Dear Bear and Beany


The Tale of Mummyhood

Keep Calm and Carry On Linking Sunday

 

Please what

Please don’t mess with my brain,

It hurts and is nontraditional,

it works the way it is designed,

in non neurotypical manner,

I don’t understand the expectations,

so please be kind before assuming,

I am not rude,

I am just confused.

Things I would like to change

Hey readers,

I love my blog as it is place where I can track my thoughts and a way to express any worries I may have. Some things recently I would like to change to help make me life little easier.

happy

Recently I have been struggling with tiredness. It normally occurs around the end of the week and think that it is just because that it is a knock on effect of all the week has on me. I get tired anyway because of how much energy it takes to deal with my autism difficulties. I think just being kind of and not so demanding on myself. Taking it slower is better for me and my health and that is what I want to achieve. I am a firm believer in taking small steps or else it can be risky to lose motivation if I push myself too hard.

journey

I also want to try to be more experimental in the kitchen and try new recipes to help with getting more confident or at least giving hubby a break from the wonderful cooking he does. However, I do love trying new recipes, even if it is just once a week, it really does help with my confidence and esteem when I achieve good results.

Because of my tiredness and anxiety I dip in motivation to go out and about. I am hoping with my YouTube and the lighter days get more encouragement to go out. The thing is when I am out I feel good but my downfall is getting past the first step.

I know so cliché but someone with an anxiety condition it has to be to try not to worry so much. I panic about my parenting and how good I am. Sometimes, just accepting situation can reduce that great big weight of my shoulders.

reflection

Cheers for reading X

Shouty Mummy

Hey readers,

Today I lost my cool, I have had enough of bickering, the noise, my  anxiety and just generaal fucking life. I scream becuase I can’t cope, I don’t know what to say to husband, who trys be the reasoner, who quite frankly pisses me off becuase he is better then I will ever be.

I am useless, all the parent training, all the promises have gone straight out of the windown yet again. I am full of shit.

I can’t communicate anything to anyone, I just want everyone to shut the fuck up. I mean  honestly who gives a fuck about mega bricks.

I am angry at the kids, at the husband at me for losing a stupid letter. I misplace everything and can’t get it together. My life has fallen apart at this moment.

I never get anything right, I make empty promises.

I try to be calm next time,

I try to listen next time,

Instead I am full of wasted air.

I try not to let my anxiety get in the way and do stupid activities that are not ideal or convenient because I  can’t be rational. I can’t work things out like most people can. I have to do something then and not later. I push, push, push! Story.Of.My.Life.

I lose my shit, get angry have a meltdown and escape to my bedroom leaving everything like a world war there zone and my husband can deal with the aftermath of my force.

I am a useless piece of shit that expects too much from everyone. I have no patience, I am too literal and always fuck up! I constantly question why I had children, am I fit mother and just dealth everything I do. I find it hard to imagine how breeze through parenthood whereas I feel a total mess at each stage of the journey.

This is me.
Thanks for reading X

Life with Baby Kicks

Them Vs You

Hey readers,

Today has been shit, full of anger and change which makes my autism flare to the limit. 

When you have a partner who doesn’t understand how change is such a big deal for you. I get the feeling they want me to snap out of it and be an ‘adult’. But how can I be when they make me feel little little. They are constantly changing things around . They almost forget my autism. When I am this enraged I feel my voice and ability to communicate go. My autism has got it’s way again and now once more I am shattered to pieces. I feel nothing but then I feel too much.  I can’t won and I am forever losing this battle.

This NT world is full of controdctnaty but now I am in a relationship it takes away my autism apparently. 

I have shutdpwn, wondering around lost and hopeless thinking is there any point?!

All the things that help me stay in control and meaning have been snatched away.

I feel an unconvince for everyone. Though hand on heart know I work more then most to be a good parent to my child. Sadly, it is me who only notices the effort, even when I am struggling I still keep going. 

Like this post, I don’t really know the point, I just feel lost and lonely!

Cheers for reading X 

Best of Worst