Ongoing minefield of parenting

Hey readers,

Sometimes I lie in my bed at four in the morning and I am just staring at the ceiling and my tummy is filled with dread. My thoughts are filled with fear and I wonder how I am going to get through another day as a parent.

I don’t feel confident at all and I am always questioning everything. Sometimes, I get annoyed with my husband, how he could allow me to be a parent when I am totally useless. I am always tired and things seem to take a long time to master. I seem to make the same mistakes over and over again.

I am now sitting in my son’s assembly hall waiting and feeling yet again that familiar feeling of being a true outcast or black sheep. This feeling is not new to me, it comes frequently where I feel like I am an outsider looking through the glass where I just can’t reach through. It feels so close yet so far away.

There are other times when I get jealous of my husband, he can just get things and communicate really well. I am sitting back permanently struggling and my tummy is in knots with anxiety. He does try to understand my neurosis bless him but he is the complete opposite of me. I watch on as he mingles and just gets these social rules that I seem to get muddled and fail all the time. I just get things, or I am just anxious state of a person. That is one good thing about summer holidays even though I am dealing with the change but not having to think. I over analysis I know but at least it gives me a break where I don’t have to feel completely sh*t again. I know I will never be one of them, good parents that I so desperately want to be, I mess up it is a natural talent of mine. I just get so fed up with it all and after takes its time. It hurts deep and it so damn frustrating. It is a minefield and just getting through the day is a challenge in its self. The thoughts that trigger me are so strong, they keep me awake and let me everytime my downfalls. I just need to a breather, time away and not to think that would be totally blissful.

I remember when I was pregnant dreaming of being this type of parent that would swim into motherhood like flies to poo. Sadly, it hasn’t happened, to delusion, I am nothing that I expected. I thought I would be good at communicating because I was living this role as a mother that it would all somehow come to place. That I would have this maternal instinct. The only thing that I am good at it appears to be is hanging up the washing and creating random fun stories for my boy. It is not much, I am never good at small talk but I take it now and I got to learn to accept the situation for what it is.

Cheers for reading my ramblings X

Regression in adult autism

Hey readers,

Now that I am an adult with autism I have learnt so much more about me and autism. One of the things that I have noticed is that at times of my life I have regressed.

decline chart

Now, when I am talking about regression and autism this is not when a child is 19 months but actually the accuracy of regression during any time of a person’s life. I myself feel that I have regressed several periods of my life. The same can be said about when I progress.

I believe that with autism as a disorder on a spectrum it is fluid and constantly shifting with the times. Hence why it is hard to fill out forms when asked for what my life is like with autism on a day to day basis. Let’s face if you know someone with autism it changes depending on what is happening in that person’s life.

An example of my regression going through changes whilst at the university from year one to year two caused me great distress. I had less support, less communication with lecturers and that caused great stress. I struggled with interpreting instructions especially when they were assignments when I had to be creative and think outside the box. One assignment involved in coming up with an adult that hasn’t been thought of before. Now, this is hard because this was a mandatory module whereby I had to do the subject even though I wasn’t that interested in.

Contemplating,Man,hands,bald

If you don’t know already I am a black and white thinker. When I do something that motivates me I get full on obsessive or in contrast demotivated and not bothered at all. The changes and dealing with university life causes me at the end of the year to result in me wanting to kill myself basically. I fell into clinical depression, my partner had to supervise me because I could not do anything by myself as I was that depressed.

Other times I have smaller regressions, if I do not go into town for a while I literally get sensory overload, All the scripts I have performed and rehearsed I forget. All the social rules have got muddled up and I really struggle. Dare I say it I feel more autistic on these days. It is like I have to keep on top and be aware most of the time or I fall backwards. It is exhausting and at times I have just stayed at home for days and not go out, feeding more on my regression.

Other times I can move forward and progress if I keep working at it. The one blocker that stops me is burnout when I am so exhausted from trying and working at it for long periods of time that I simply need to stop and shut down. My brain has had enough of all this information, it want’s a breather and time to just be.

I have only recently learnt that one of the reasons I get so exhausted if I am in a social environment is because I am on hyperfocus, my brain is on alert all the time, anxiety high and I am just not relaxed. Naturally, my body is just going to say stop and need a break to relax.

medieval,lamp,indoors,architecture

So, as you can see regression can be short or long term but autism is constantly shifting between progress and regress.

Cheers for reading X

The struggle is within

Hey readers,

I don’t often discuss my parenting issues in relation to my autism, mainly because I am embarrassed and quite frankly ashamed.

I am going to be straight up and honest and say that I struggle with this parenting thing. Let’s be more specific as I am aware that actually, I am good at some bits. Depression would argue but that it is the truth. However, the one area I do struggle with is mainly with my 4 years old and trying to entertain him for long periods. I feel guilty if I can’t entertain him but stuck in a dilemma where I can’t concentrate on people for long periods of time, it totally exhausted me. I am also an introvert so therefore need time alone to energise me, I find interacting exhausting as a lot of the time I am thinking beforehand about how to communicate. The times when I am not thinking are when I am being impulsive due to anxiety therefore not censoring and not always saying the right. Not really rude, just random and repetitive. Kinda overlaps with ADHD/OCD traits I have learnt. I don’t have ADHD but with Aspergers there many overlapping traits from other conditions that are apparent. I digress (a major trait of mine right there).

I find it hard to entertain as there are many thought processes that occur and that is tiring. 9 times out of 10 after ten minutes of play I am exhausted mentally. I need to do nothing and shut down as I have used all my energy up focusing on that one action that takes many different social rules.

Little Girl, Child, Girl Child, Person

I think one area that is really tough for like me as an autistic living in a technological world (though most of the time it is the dream) I do get sucked into the whole idea of perfect parenting with this idea that you have to entertain your children all the time.

I am one of the few or many not many other autistic people have spoken out in actually I do care what people think and I am very aware of me. I am not dissing autistic people that don’t give a dame, in actual fact, I admire you and wish I was bloody like that, hell it would so liberating. But I have not reached that acceptance of me.

I wish I could just be laid back, but it seems I am a worrier and feel that because I am an autistic parent I need to make up for my inadequacies.

Cheers for reading X

 

Maybe

Hey readers,

I have Asperger’s Syndrome, a mild form of autism (though to me it is not mild and it is present every day in my life).

Though there are so many areas to discuss autism today I am going focus on one thing that affects me and causes great distress at the moment. That is the word ‘maybe’, which by the way I hate it and I hate it in relation to a response to a question. It is covered in grey and makes me stressed, especially when it is a response to a question which I want a definite answer (which 90% of the time).

Birds II

You see as an autistic person I like control, I like to know what is happening. I love routine it comforts me. Sometimes I admit I get too rigid that I get struck and obsessive making my health deteriorate. One of the reasons is because I like black and white, I don’t like the murky waters of the unknown. I never have, I feel it is innate and my body responds instantly. I can remember as a young child-hating change and uncertainty. I had carers who seemed unpredictable which is not great if you have an autistic mind like myself you get very confused as to what is happening.  I was on edge not knowing how someone would respond. I had night terrors because of the fear. That is just one example.

chicago night traffic

Maybe I will, maybe I won’t? but why can’t I have a yes or a no? Often, I didn’t care either way, I was more focused on the answer to be certain. I don’t like guessing games, I like certainty.

The blue window 02

I don’t know really what is the point to the point of this post, I just wanted to get it off my chest because right now I am dealing with maybe which quite frankly is most infuriating.

cheers for reading X