Blog Therapy 

Hey readers,

Some days are really crap, you wonder how you are going to get through them especially when it is only 9:30 on the morning.

I am so tearful because I have reduced one set of medication. I know it is only a side effect and will be worth the pain in the long run. But right now it is a struggle especially when I am so needed during the summer holiday.

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I am not very good when people demand me for long periods of time.  For me being autistic it is mentally draining and a real battle. I need to switch off and sometimes I just need escape to my bedroom for some peace for five.

I feel a bit suffocated as well being in a flat and the weather being rubbish. I just haven’t got the motivation to anything when I am so tired.

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I feel so guilty for feeling tired when I should be on the ball but sometimes I question My ability to parent such as today. I know this is just short lived and because I am frustrated, that being said I have to battle with this thoughts.

I feel pulled into two ways to right my personal feelings as one side of me thinks I am being silly. The other side feels it is cathartic and may help someone.

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It is amazing how powerful words on and just writing down your thoughts can really help even if there is no solution. It is a bit like therapy and that is one of the reasons why I love to blog. As in real life I am rubbish at expressing myself to others. Words seem to get mangled up and I stutter and shut down. Again this is influenced by my autism.

So, that is why I turn to my blog as a place of comfort and release of emotions. I don’t feel judged and it is a place where I can freely right without having to worry about all the other social aspects involved when speaking verbally.

Cheers for reading X

Bringing up Georgia
Real Mum Reviews

On the side line 

Hey readers,

When I was a child I did this thing called masking, aka faking it and what this means is that I learnt the behaviour of others. The problem being is that if something changes that I can mess up badly because I can’t be flexible with my thinking. That is the one of the characteristics of autism is we manage change and see things  black or white especially when it comes to learn.

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I think it’s really hard being an autistic girl growing up because there is so much more pressure to be sociable then a boy. That all the boys got away with not getting noticed there for less social pressure. I used to absolutely hate being a girl because of this reason and I thought boys had it a lot easier or more relaxed attitude with regards to social and communication which suited me perfectly.

Now that I’m an adult I find it a bit more easier because I have more experience and knowledge but I still frequently mess up. If I am feeling anxious or if there is too much going on in my head can’t seem to focus on the rules. There are times when stressful factors cause me more brain power than normal and it is like I regress in my behaviour. That is why it’s so hard to measure autism, as it is not something that you can say x y and z it’s constantly shifting depending on the environment and mindset of that individual.

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Since being a parent I have learnt that there are so many other social rules involved when bringing up a child.

I first it’s lovely when my children where new born as there is less pressure on me to be sociable but since my child has started school last year I noticed that there’s a hell of a lot more interaction going on.

Me being an autistic parent does affects my self esteem. A lot of the time I feel inadequate,  especially as my husband is very good at communicating and engaging with others. It leaves me feeling really angry and frustrated. I know comparing is the worst thing to do but it coincides with me learning of other people.

I think  one of the hardest and upsetting things is when  people don’t see you as an individual but some sort of invalid because you’re autistic. They don’t look past the label or they do but then they just talk down to you in a condescending way. The thing is I am aware exactly what is happening, I just I don’t have the skills to communicate and express myself as clearly as other people do.

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It has really made me feel quite low at times because I feel like I can’t give my child everything that a typical parent has to offer. I suppose that is why I enjoy the school holidays more because I don’t have to worry about the social things. The only downside is that when I return I have to deal with the social side of education and what not.I feel rubbish and I have felt very very low causing me to struggle to get up in the mornings. I have also learnt to avoid situations and tend to get my husband to do them tasks because it’s too upsetting at times to have to face the discrimination against me. I think that’s one of the saddest things about being an autistic parent is the fact that you deal with a lot of rejection or misunderstanding. I like my voice isn’t heard and again that familiar Outcast feeling appears.

Cheers for reading X

Twin Mummy and Daddy
Sticky Mud and Belly Laughs

What you see

Today I feel defeated,

I cracked,

Now it is all poured out,

when will it stop,

I dread,

I doubt,

I feel the pressure go,

Slipping away,

as my wound unfolds.

Autistic Feet

Hey readers,

My feet hurt today as a result of over using them yesterday. I know so what?! Here is the think why I am talking about my feet is the fact I am autistic you see and my feet posture is not very good. I have always had problems with standing and the way I coordinate my feet.

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I am so clumsy as well when I walk, I am guaranteed to trip up even if there is nothing there. The amount of bashing my toes into stuff and cursing under my breathe is unreal. My husband affectionately finds it funny.

I also shuffle my feet, especially when I am stressed. I am constantly getting told stop shuffling your feet like I am some kind of child.

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You don’t realise how hard it is to put one foot in front of the other. It can be really challenging. I never really thought about my physical problems when I was younger and now as an autistic adult I am still learning.

It is my arms I struggle with – not really knowing what to do with them when I walk, I find them painful and just frustrating. It is like I have to train my mind to swing my arms when I walk. It is so difficult as I am rubbish at doing two tasks at the same time.

One of the major problems that I struggle with as an autistic person is using my spacial awareness skills and navigating around objects and people. I am not good at forward planning especially in a busy place where I am over stimulated with the sensory information. Sometimes, I get so overwhelmed that I need to sit down and take a moment to take a break because of how mentally exhausting it is.

If I don’t think about my walking and focus on it, I really struggle with bumping into things or trip up.

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We as a human are meant to learn this skill at an early age and it to be developed. Therefore not having to think about it as it is a long term in implicit memory. It is wired in the brain so you don’t have to think about it, it is second nature.  Being an autistic person we miss out on this opportunity and I do wonder before language evolved how many humans died due to lack of ‘natural’ skills due to having a different way of thinking.

So, therefore if you do wonder why do us autistic people get SO tired this is a little insight, because we have to constantly work our asses of and remembering all these ‘natural’ rules that people take for granted.

Cheers for reading X

Best of Worst
Cuddle Fairy
Bringing up Georgia

Social anxiety kicks in!

Hey readers,

Today I attempted to a volunteer place but totally failed at it and now I feel a fool. 

It was an admin role but it was in an open arena with different people at different desks etc. and I just felt overwhelmed, uncomfortable paranoia and anxious. 

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I was so anxious that I had a panic attack. I felt so claustrophobic in that room. Like a fish in a glass bowl and everyone was staring at me. It is the most horrendous and intense feeling ever. 

I just could not handle it mentally. I don’t do small talk and the things I think about to talk about are not appropriate. I think it is anxiety that does that. 

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I just could not handle it and just went into flight or fight response. I forgot how bad my social anxiety can be, I have not been in this type of social situation for a long time.

I hate myself and now I am beating myself up about it. I know when I have cooled down and talked sense to myself I will see it from a different perspective but right now, in this moment, I am really down and emotional.

I feel that my response and lack of ability makes me a bad person, incapable and a failure. For a brief second I was tempted to jump in front of a train. Don’t worry I won’t but I want to be frank and real. This is real life going through the motions. You have a warped view of yourself and what you ‘ believe’ others think. 

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I feel I am less of a person because I can’t do this role, because I view success on where I have a job or not and feel that what society views as a good person or parent. This message feels even more present currently through the media when we are heading towards the general elections. 

I feel I have let myself down and my children. Why can’t I accept that I am autistic and some things are hard? I would never, ever expect a person who is confided in a wheel chair to just get up and walk.  That does not stop me being so hard on myself because the stigma is still prevalent and I don’t in normal life discuss really autism because to be perfectly honest I am embarrassed and ashamed. I feel guilty and let down. I know you’re going to say I shouldn’t feel like this but I do and I have experienced people judge me so it is hard to change. Though on a positive note it is something I am working on, but it takes time especially when it damages you so emotionally. The treatment is still discriminator out there, people see mental illness or invisibility as a negative and something that makes you less of a person.

I think I am also scared with regards to autism as it was reported in the news that NHS are diagnosis less children with less severe autism. What next I feel like autism is misunderstood and I am scared for myself and others what the fortune holds. 

Cheers for reading X

diaryofanimperfectmum

Brilliant blog posts on HonestMum.com

Dear Bear and Beany

Bubble

It’s this time,

that gets me,

when no one

is here,

alone,

without turbulence,

just me and silence,

I feel sane,

with no blame,

this is me,

in my bubble.

Autistic adulting sucks!

Hey readers,

I hate people, seriously all they ever seems to do is be fake it. Why can’t people be honest and just tell the truth because you think it hurts peoples feelings. But here is the thing I already know so don’t pussy around the subject.

It sucks being autistic, the constant rejection of people, pretending to be nice when really they don’t give two monkeys.

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I am sick of it and sick of this world that I live in. It doesn’t help I am stuck in places where people don’t really know where to put me. Let’s face facts first impressions count and no one likes the awkwardness of the autistic people, it is much easier to just deny us the opportunity. Even though us autistic people would so bloody hard, more so then the average person because we have to,i t’s a fight to fit in when your just totally failing on the outside. I feel lost and I don’t belong, this place feels lonely. Sometimes, I just can’t face it anymore but once again you have to find the strength to get back up again even though you are plummeting into a dark, dark place.

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It sucks to have to undergo interviews when clearly they are not autistic friendly and again I feel like my needs are met.  Don’t you understand us autistic people can’t cope with question after question without getting burnt out, not to mention the social interaction, it takes all our resources to get through it to then be told that actually we are not looking for people at the moment. But why put me through this hell, what you really mean is your not a suitable candidate, just be honest, at least I know where I stand. Right now I feel insulted and taken for a full. It took all my energy to get out my comfort zone and I am devastated. It really does suck because of the effort I but into these things but never get the opportunities, I don’t know why I bother.

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Even as an adult I am always dealt with the hand of rejection and you know what people it sucks, big time for us autistic people to be treated like this. I am just thankful for my blog as it is an outlet when other times I can not muster the words to anyone the pain I am battling everyday. Rant over!

Cheers for reading

d

ethannevelyn.com
Post Comment Love
Twin Mummy and Daddy

Depression and parenting

 

Hey readers,

Sometimes I feel that on my blog I should not discuss depression as I am so ashamed, because that is what society makes me feel like at times. I have always been embarrassed to say that I take anti-depressants and that in-turn makes me feel weak. But deep down I know that my depression is genetic and chemical reaction, it doesn’t make me a bad person because of it.

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Truth be told as a parent with depression there days when I hardly do anything, the only thing I attempt is to the the bear minimum for my children. Once the children have gone to bed it allows me time to cry from all the build up sadness and  frustration from the day.

Some days are better then others, but now again I get dips and need that extra hand from my husband. For instance, I struggle to deal with the social side of taking my children to nursery or school. It is not always just the socialising but the physical environment is so hard for me to manage. I literally feel so suffocated  and overwhelmed by the sensory stimulation that is happening in the room. I am autistic on top of all this and usually I can find that it interacts with the depression.

Therefore heightened social situations can make me feel rubbish and can contribute towards me beating myself up for not being a good enough at being a parent because I am not like all the parents. It tends to result in me coming home and breaking down. I feel rubbish and tend to just want to sleep in order to escape the reminder of my shortfalls as a parent and person.

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Other times, I struggle with dealing with the temperament of my children or talking about topics such as death, as this can trigger my OCD. No one teaches you how to communicate to your child and some days I just have to admit to defeat as it is too tough for me to deal with and hubby would have to take over.

When I am going through a dip in my mood I can spend the whole day dragging myself down, I physically feel on edge and know that after all this there is going to be a massive panic attack. I hide away from my husband, as I am not good at communicating in that moment, I don’t instantly have the words to say. I feel therefore this risks the changes of irritability between me and my husband. I don’t like being touched for a cuddle, I just need the time for me to mope and allow the emotions to pass. I don’t want solutions, I try lots of things but in that moment I just need to be. I don’t run form it anymore, at the end of it I kind of feel better getting it out of my system. It helps me feel calmer and my body feels like it is being heard.

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Sometimes, the best thing is to accept it at that moment, don’t find solutions because at the end of the day it is something that you can deal with at a later date when your mind is in a clearer state. I have learnt when you are that emotional, nothing makes sense and I tend to make the wrong decisions so it is better for me to not make any decisions at all during my ‘meltdowns’. I feel now that I have learnt how I react and what is best for me is less painful and it allows me to feel more in control ironically.

Cheers for reading X

3 Little Buttons

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