My word of the week is:
because I received the letter from the DWP for a reconsideration answer for a request to look at my application again for disability benefit.
The answer was no and scored zero again. I even included a letter of support from my old CPN but it appears that they have sent out the letter two days before receiving my letter, I just don’t know I bother.
It is headache that I don’t really need and it’s making me feel crap. This is how it is now we have to fight for an appeal. my anxiety goes through the roof and I just don’t feel good knowing that I have to wait for the whole appeal process to happen which could take months.
This seems to be making my mental health worse, it just makes me so angry as I have worked so hard over the past couple of years to make small but big improvements.
I suppose I have to remind myself I am not alone and other people also have to fight. I just feel angry at the system which is meant to help the I’ll and disabled. but they have just let most of us down big time.
Cheers for reading X
Today has been tough, as I write this it is the evening of Christmas Day, my son has had a three hour meltdown, including an unexpected visitor at the door causing further distress.
Both me and my eldest have autism and are greatly affected by change and over stimulated environments. As lovely as Christmas can be to celebrate a time when families get together, it can be very difficult for an autistic person because it is out of sync to their routine. Not to mention the stress of new stimuli in the environment even though I and my son enjoy presents it can still contribute to anxiety.
The whole idea of a day where it is completely different from normal, unpredictable and long can take its toll. This normally exhibits itself in a meltdown due to struggling with how to deal with emotions.
The bright lights, the busy chaoticness of the day, the length of time together are all influences that can trigger an autistic person. It is hard even as an adult after experiencing Christmas several times in my lifetime I still struggle. I think the not really knowing what I am meant to do is tough.
This year I seem to feel more sad because I witness the autistic behaviour in my eldest more. I can feel his pain and I know this is so illogical and silly but truth be told part of me hates myself for being the risker of passing down the genes on to my son. No one really likes to see their child in pain, you want them to be happy and thrive. I don’t care if I get slated by the autistic community if I could take that pain from my son away I would in an instinct. Yes there are some super qualities but I would choose happiness over stress any day of the week. I want the best for my son, I don’t want him struggling, however the autism will always be a barrier and it is something we will have to manage. That doesn’t stop me from being sad. I love my son unconditionally with autism but if I could I would get rid of it. He is struggling in a neurotypical world, I can see pain now and that it is the hardest bit, seeing my poor boy struggle, I just want to protect him and see him happy. That is all.
Cheers for reading X
This evening has been tough, it real has been a battle within my own mind. My husband has boxes everywhere, there is crap everywhere and my anxiety is through the roof. I can’t escape as the doors are closed and only I am confined to the living room as it is not safe for my children to go into any of the other rooms.
There are boxes near the front door, I feel suffocated and angry. Today I feel I am not designed to live in this neurotypical world. I am not suited to living with people and there crap, it is everywhere and there is no order.
My eldest has had major meltdown and screaming matches to add it all into the mix. My ears are ringing. My anxiety is making me shake like a leave. I want to cry but my depression makes me feel so numb. I wish I could just run away, this parenting malarkey is shit. No one cares. I am alone and I just want to switch over. I am struggling with noise, the lightning just all the information. I want my brain to shut down, I want this noise to go away. I want to run away instead I am stuck looking at these four walls and thinking what have I done to my life.
I hate my autism, I don’t care what you think. Days like today I wish it would go away, instead it is always there. How am I meant to feel good about this? what bit of this is good? I feel rubbish and worthless piece of crap and it seems everything I touch goes belly up. I can’t read or communicate correctly. I just don’t see the point, I just want darkness or just some quiet. My world is full of noise and want it to stop so I can breathe.
Cheers for reading X
Sometimes you have to go with the wind,
to learn a lesson,
and move forward.
Some days are really crap, you wonder how you are going to get through them especially when it is only 9:30 on the morning.
I am so tearful because I have reduced one set of medication. I know it is only a side effect and will be worth the pain in the long run. But right now it is a struggle especially when I am so needed during the summer holiday.
I am not very good when people demand me for long periods of time. For me being autistic it is mentally draining and a real battle. I need to switch off and sometimes I just need escape to my bedroom for some peace for five.
I feel a bit suffocated as well being in a flat and the weather being rubbish. I just haven’t got the motivation to anything when I am so tired.
I feel so guilty for feeling tired when I should be on the ball but sometimes I question My ability to parent such as today. I know this is just short lived and because I am frustrated, that being said I have to battle with this thoughts.
I feel pulled into two ways to right my personal feelings as one side of me thinks I am being silly. The other side feels it is cathartic and may help someone.
It is amazing how powerful words on and just writing down your thoughts can really help even if there is no solution. It is a bit like therapy and that is one of the reasons why I love to blog. As in real life I am rubbish at expressing myself to others. Words seem to get mangled up and I stutter and shut down. Again this is influenced by my autism.
So, that is why I turn to my blog as a place of comfort and release of emotions. I don’t feel judged and it is a place where I can freely right without having to worry about all the other social aspects involved when speaking verbally.
Cheers for reading X