Autistic Feet

Hey readers,

My feet hurt today as a result of over using them yesterday. I know so what?! Here is the think why I am talking about my feet is the fact I am autistic you see and my feet posture is not very good. I have always had problems with standing and the way I coordinate my feet.

walking

I am so clumsy as well when I walk, I am guaranteed to trip up even if there is nothing there. The amount of bashing my toes into stuff and cursing under my breathe is unreal. My husband affectionately finds it funny.

I also shuffle my feet, especially when I am stressed. I am constantly getting told stop shuffling your feet like I am some kind of child.

walking 2

You don’t realise how hard it is to put one foot in front of the other. It can be really challenging. I never really thought about my physical problems when I was younger and now as an autistic adult I am still learning.

It is my arms I struggle with – not really knowing what to do with them when I walk, I find them painful and just frustrating. It is like I have to train my mind to swing my arms when I walk. It is so difficult as I am rubbish at doing two tasks at the same time.

One of the major problems that I struggle with as an autistic person is using my spacial awareness skills and navigating around objects and people. I am not good at forward planning especially in a busy place where I am over stimulated with the sensory information. Sometimes, I get so overwhelmed that I need to sit down and take a moment to take a break because of how mentally exhausting it is.

If I don’t think about my walking and focus on it, I really struggle with bumping into things or trip up.

walking 3

We as a human are meant to learn this skill at an early age and it to be developed. Therefore not having to think about it as it is a long term in implicit memory. It is wired in the brain so you don’t have to think about it, it is second nature.  Being an autistic person we miss out on this opportunity and I do wonder before language evolved how many humans died due to lack of ‘natural’ skills due to having a different way of thinking.

So, therefore if you do wonder why do us autistic people get SO tired this is a little insight, because we have to constantly work our asses of and remembering all these ‘natural’ rules that people take for granted.

Cheers for reading X

Best of Worst
Cuddle Fairy
Bringing up Georgia

Social anxiety kicks in!

Hey readers,

Today I attempted to a volunteer place but totally failed at it and now I feel a fool. 

It was an admin role but it was in an open arena with different people at different desks etc. and I just felt overwhelmed, uncomfortable paranoia and anxious. 

alone

I was so anxious that I had a panic attack. I felt so claustrophobic in that room. Like a fish in a glass bowl and everyone was staring at me. It is the most horrendous and intense feeling ever. 

I just could not handle it mentally. I don’t do small talk and the things I think about to talk about are not appropriate. I think it is anxiety that does that. 

alone 2

I just could not handle it and just went into flight or fight response. I forgot how bad my social anxiety can be, I have not been in this type of social situation for a long time.

I hate myself and now I am beating myself up about it. I know when I have cooled down and talked sense to myself I will see it from a different perspective but right now, in this moment, I am really down and emotional.

I feel that my response and lack of ability makes me a bad person, incapable and a failure. For a brief second I was tempted to jump in front of a train. Don’t worry I won’t but I want to be frank and real. This is real life going through the motions. You have a warped view of yourself and what you ‘ believe’ others think. 

alone 3

I feel I am less of a person because I can’t do this role, because I view success on where I have a job or not and feel that what society views as a good person or parent. This message feels even more present currently through the media when we are heading towards the general elections. 

I feel I have let myself down and my children. Why can’t I accept that I am autistic and some things are hard? I would never, ever expect a person who is confided in a wheel chair to just get up and walk.  That does not stop me being so hard on myself because the stigma is still prevalent and I don’t in normal life discuss really autism because to be perfectly honest I am embarrassed and ashamed. I feel guilty and let down. I know you’re going to say I shouldn’t feel like this but I do and I have experienced people judge me so it is hard to change. Though on a positive note it is something I am working on, but it takes time especially when it damages you so emotionally. The treatment is still discriminator out there, people see mental illness or invisibility as a negative and something that makes you less of a person.

I think I am also scared with regards to autism as it was reported in the news that NHS are diagnosis less children with less severe autism. What next I feel like autism is misunderstood and I am scared for myself and others what the fortune holds. 

Cheers for reading X

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My boy of late…

Hey readers,

I have a confession to make, today was hard day for me mentally, not only am I dealing with my  own issues but also them of  my son’s. Today he had a major meltdown which left us at breaking point. Not just for me I think, but actually for my husband as well. My husband is normally chilled out and causal about stuff so, it must be pretty bad when he is worried about how he will not only mange  with his wife’s autism (he is my carer as well) but potentially his son’s.

back

I am currently sat in the other room because I really can’t cope at this point with my son’s screaming for over an hour.

We went to visit a butterfly farm locally to us, today, the butterflies are in a massive green house room and can freely flutter by. Here is where the problem lies, my son had a meltdown at this place because he could not cope with the butterflies random movement (which  I struggle also struggle with) but had taken medication to physical effects of anxiety).  He is 5 years old and is an independent walker however, my husband had to carry him around as the only place where he was calm after the heightened anxiety was where the butterflies were not in one of the other areas. The moment he stepped back into the arena where all the butterflies were that was it again, he just could not cope with it and was panic attack.

All afternoon he has been on a roller-coaster of emotions. But finally he has settled to just streaming and I mean screaming. He literally has to be restraint because of how violent his behaviour has become. He is biting, scratching, hitting, and lashing out and potentially harming our youngest.

Now,  I have been on a parenting course where it is frowned upon restraining children. I am very conscious of this. I do not do it under any circumstances but when it is a situation where risk involved and the child is hurting themselves and no other way can help that child stay calm then is not much left we could of done.

tea

Now you are wondering have we been to the professionals to discuss our concerns and the answer is yes, several times. Let me tell you the background, firstly he started school this September so we approached the school to see what his behaviour was like and to ask for guidance. They did observe but didn’t feel any worries. So, we went to our GP, he said to speak to the specialist person. SO we did and filled out our worries on paper, then they would investigate. That was fine, they came back to us I think within the month saying that they have taken on board our concerns but because his behaviour is not affecting him at school that they can not really do anything. However, they did say that come back in a year and see what is behaviour is like and see if any behaviour changes have occurred.

Well that is great help because as most of us know generally children are totally different when they are school, it is a different environment etc. I asked my cpn (community psychiatric nurse) who see’s me for my mental health what his advice is because he may have had experience and what he thinks we should do.

He said that the only path at the moment is through the school or GP. So because my son’s behaviour is masked (because I know for one he copies a lot of behaviour, he is very similar to me. I kid you not my husband always says that talking to him is like talking to me).

cold

So, basically there is no other avenue, because apparently if the child is perfectly well behaved then the child will go through the net but if the child is extreme then they will get the help they deserve. Bearing in mind that these teachers are looking after 30 odd children so they can’t spend long periods of time with them individually. It is just so frustrating right now because we just don’t know what to do but one thing is for sure no seems to care if your not extreme. They see the whole picture and that is what really sucks.

I am writing this so that I can document my journey with my eldest, who knows where we will end up but his behaviour is erratic and there is genuine concern there.

Cheers for reading X

Dear Bear and Beany


The Tale of Mummyhood

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